No Survivor Left Behind

Participants in the one of Cancer Services’ new
Survivorship Events: The Shine a Light on Lung
Cancer Vigil held this past November and sponsored by
The Lung Cancer Alliance.

Every new year brings new resolutions and Cancer Services has made another one for you in 2012. Each month, Cancer Services will be hosting a different survivorship event to celebrate and honor a survivor’s journey. It’s no secret that some cancers get more attention than others. At Cancer Services we want to make sure all our clients feel supported in meaningful and relevant ways.

Starting this past November, Lung Cancer Awareness Month, Cancer Services hosted a special Lung Cancer Survivorship Luncheon to which clients could invite their family and caregivers. We also hosted the Shine a Light on Lung Cancer Vigil, open to the entire community.

Cancer Services will continue similar events in 2012 bringing together various survivor groups in a personalized and meaningful way. Director of Support Programs, Esther Sachse, LCSW explains, “All our clients are important to us and we want to support them any way we can. Survivorship luncheons are a great opportunity for clients to network with others and celebrate the meaningful life one can lead as a survivor.”

According to the National Cancer Survivors Day Foundation, a cancer survivor is anyone with a history of cancer, from the moment of diagnosis through their journey. Thus Cancer Services refers to all clients as "survivors.” We are here for you and all 6,000 of our clients as you live with, through and beyond cancer.

For more information on our support groups or any of our support services, call Natalie at 927-2273.

Steve Lousteau for Cancer Services

Steve Lousteau (right) with his children
Jeffrey and Jennifer.

While growing up in south Louisiana, I knew that
cancer was a disease that impacted many people. Because there was no experience of cancer in my own family, I developed a false sense of security that I would go through life not having to deal with such a dreaded illness. That all came to an abrupt halt when my wife’s sister, Lena, was diagnosed with stage IV breast cancer in December 2005. In spite of an operation and numerous treatments, our family lost Lena in March of 2007. My family was devastated.

We “picked up the pieces” and began the recovery process of overcoming the loss of someone who was so dear to so many. Then in July 2008 my family was hit with more shocking news…. my wife of 29 years, Amber, was diagnosed with stage IV lung cancer. Amber fought the good fight but passed away in May 2009. While the physical, emotional, mental and financial stress in fighting this deadly disease is excruciating, the pain that I, and my children, felt after losing someone we so dearly loved is beyond description.

Then more bad news hit my family in November 2010 when I was diagnosed with prostate cancer. My first thought was, I can’t believe this is happening again! Fortunately for me and my family, my situation has a happy ending. Because of early detection and a successful operation, I am pleased to report that I am cancer free and enjoying life again.

So why do I share my story with you? It is because you never know when cancer will strike you, a family member, a friend or a colleague.

The common thread that weaves through each of my own family experiences with cancer is the phenomenal support provided by Cancer Services. This is a great organization that can provide aid in the form of information, financial assistance and resource support. I’m deeply indebted to them for providing me resources to help Amber while she fought for her life.

The life of any organization is dependent on the financial strength of its organization. Cancer Services is no different. Being that Cancer Services is a non-profit organization, it relies on contributions from the generous citizens of our great community to help continue its mission of helping people afflicted with cancer. While I hope and pray that you never need Cancer Services, Cancer Services very much needs YOU! Your gift enables Cancer Services to continue to help cancer patients and their families when they need help most. Visit their website to donate online or by mail to 550 Lobdell Ave. Baton Rouge, LA 70806. Feel free to stop by to see how your gift helps those living with cancer every day.

Thanking you in advance, please make a difference by donating today!

The Huckaby Family for Cancer Services

Do you worry about your kids? We all do. We worry about how they do in school, about them driving and going out at night. We never worried about cancer until our 14-year-old daughter, Brenna, was diagnosed with osteosarcoma, a cancerous bone tumor, in September 2010. At that moment, cancer changed our world.

When you see pictures of bald kids smiling after their treatments, that’s just one moment; the reality is sitting in a room for hours and hours with other sick children, having poison pumping through their IVs. After weeks of these chemo treatments, Brenna’s tumor was still growing and we were told that her best chance was amputating her right leg. She had the surgery two weeks later.

We live in a different world now, the world of childhood cancer. We wandered aimlessly into Cancer Services soon after her diagnosis. We didn’t have to ask for anything or even really say anything because they took us by the hand and explained what they could do for our family. The emotional, nutritional and financial services, all free of charge, fulfilled needs we didn’t know we had and helped us with the “what’s next.”



Jeff, Brenna & Kristie Huckaby
with Speckles.

Cancer Services’ Children’s Programs provide us the opportunity to meet other families living in this world of cancer. At the monthly activities, Brenna interacts with other cancer kids, and we get to connect with the parents in a fun, social environment. Cancer Services gives us a break from cancer and the chance for our family to spend precious time together. While we were at MD Anderson in Texas we saw similar programs, but having Cancer Services right here in the Baton Rouge community for these children and everyone else living with cancer is so special and important. But they need your help.

Brenna, a sophomore at St. Michael’s, wears a prosthetic and is returning to gymnastics and making plans to go skiing this winter. Shortly after the amputation she caught a little boy staring at her. As she passed him on her crutches she said smiling over her shoulder, “This is what happens when you don’t eat your vegetables.” Her wonderful attitude, our family and support from Cancer Services are helping to make our world normal again.

In our world, we don’t worry about the small stuff anymore. The most important thing in life is the people in it. We hope you never have to experience our world of cancer, but we’re glad that Cancer Services is here to help make that world a little easier.

Their Children’s Programs have been invaluable to our family, but we know that Cancer Services provides equally important services for adults. They are the only agency in our area providing direct assistance and support to cancer patients – no matter their age – and it’s all free of charge. But they can’t do it without you.

Please consider supporting Cancer Services of Greater Baton Rouge. You can make a donation online or by mail to 550 Lobdell Ave. Baton Rouge, Louisiana 70806. Thank you and best wishes for a meaningful holiday season with your loved ones – in your world.

-Jeff, Kristie and Brenna Huckaby.

Children's Ho-Ho-Holiday Party!

Cancer Services of Greater Baton Rouge hosted its annual Children’s Holiday Party on December 4th. The Childrens Programs consist of Candlelighters, children with cancer and their siblings, and KidsKare, children who have a parent or guardian living with cancer. Over 300 children, siblings, parents and friends gathered for food, dancing, gifts and of course, Santa! For over 50 years Cancer Services has been improving the lives for those living with, through and beyond cancer in the Greater Baton Rouge area.

Hats off to Volunteers!

On November 9^th, Cancer Services of Greater Baton Rouge hosted its annual “Hats Off to Volunteers” Appreciation Party. Fifty-five volunteers donned their best hats, symbolizing the many different roles they help fulfill, and enjoyed a meal prepared by a very thankful staff. So far this year, Cancer Services volunteers have worked over 6,500 hours to help further the agency’s mission of improving life for those living with cancer. For more information about volunteering at Cancer Services, visit our website or contact Cindi Tramonte at 225-927-2273.

Q&A: Caregiving During the Holidays

Every Sunday, Cancer Services publishes a Cancer Q&A in the Health Section of The Advocate.

Q: My husband is battling cancer and I’m not sure how to handle this during the holiday season. What can I do to make it better for him?

A: First of all, you are already showing your willingness to support him just by inquiring. Here are some ideas for caregivers when caring for someone during the holidays:

• Understand if your loved one is not feeling in the mood to celebrate
• Be supportive of your loved one’s feelings
• Be a good listener
• Keep an eye on your loved one – if your loved one can’t get up or doesn’t get out of bed, this could be a sign of depression
• If your loved one always enjoyed holidays, then offer to decorate for them
• If your loved one wants to send out cards, offer to help address envelopes
• Discuss the holidays in advance
• Make sure the food /smell is not something that would cause nausea
• Don’t compare holidays
• Don’t be afraid to ask for help from your friends, family, and neighbors
• Consider talking to a counselor to help you get through what can be a very stressful time.
• Continue healthy eating and exercise

For more information contact Courtney Britton, librarian at Cancer Services of Greater Baton Rouge at 225-927-2273 or visit the Resource Center at 550 Lobdell Avenue.
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Q&A: Coping with Cancer During the Holidays

Every Sunday, Cancer Services publishes a Cancer Q&A in the Health Section of The Advocate.

Q: I am battling cancer this holiday season. Do you have any tips to help me deal with the holidays?

A: Coping with holidays when you have cancer can be very difficult. The following are some tips that you may want to try in order to help you cope:

• set limitations and make realistic goals
• ask for help
• don’t hide your emotions – it’s okay to feel overwhelmed
• consider talking to a counselor
• plan early so you can be prepared
• remember that it’s okay to say “no”
• surround yourself with supportive people
• continue healthy eating and exercise to help ease stress
• do not isolate yourself - stay connected to those you love
• create new tradition, if you feel okay doing so
• don’t forget to relish moments of joy no matter how bad things might seem
• go out to eat or have a pot-luck dinner if preparing a meal is too much
• be picky about what you choose to expend your energy on
• think about what questions might be asked concerning your cancer and plan how you will answer questions
• if you are away from family, try and spend time with friends or neighbors

For more information contact Courtney Britton, librarian at Cancer Services of Greater Baton Rouge at 225-927-2273 or visit the Resource Center at 550 Lobdell Avenue.

Q&A: Holiday Nutrition

Every Sunday, Cancer Services publishes a Cancer Q&A in the Health Section of The Advocate.


Q: What are some things to consider when preparing for holiday meals during my cancer treatment?

A: One of the best ideas is to do just what you are doing now: Plan ahead. Consider the side effects you’re experiencing and what foods can help alleviate them, or what foods you should avoid. If you are hosting the dinner yourself you will be able to control what you cook. If other people are creating part of the meal, there is a good chance they will ask you if you have any specific dietary restrictions. If they don’t, make sure that you create your own items so you know that you have some food you can eat. If you are unsure of what is best for you, consult a registered dietician or ask your doctor or nurse to provide a consultation. Additionally, the library at Cancer Services of Greater Baton Rouge has cookbooks and materials on nutrition available to anyone to check out.

It is also smart to make healthy replacements. Focus on using spices for flavor instead of just depending on salt and use low sodium broth when possible. Eat a roasted turkey instead of a fried version. Try wild rice instead of a traditional stuffing. Have fresh fruit for dessert or make healthy substitutions during baking, such as egg whites or applesauce instead of oil. Avoid alcohol, instead opting for water or a club soda.

Perhaps one of the best suggestions is simply to focus on family and friends instead of food. Take time to talk with those you might not see often and make plans for other activities outside of eating. Volunteer at a charity event or take time to make holiday decorations or presents as a group. And a post-dinner walk instead of a post-dinner nap is a great opportunity to continue conversations and to get exercise.

For more information contact Courtney Britton, librarian at Cancer Services of Greater Baton Rouge at 225-927-2273 or visit the Resource Center at 550 Lobdell Avenue.

Spread TWICE the Joy!

Everyone enjoys receiving holiday cards. Taking the time to spread a little joy is a huge part of the season. This year, why not spread TWICE the joy by purchasing your holiday cards from Cancer Services? Not only will your loved ones enjoy receiving your well-wishes, but your purchase will directly help those living with cancer in Greater Baton Rouge.

Holiday cards come in twelve different designs and special occasion, birthday and thank-you cards are also available, as and personalized printing. All cards are created specially for us by local children living with cancer.

For $15 you get 15 cards, including envelopes, and the knowledge that you're making the holidays a little brighter for your friends and family as well as the friends and families in this community living with, through and beyond cancer.

To order click here, stop by our location at 550 Lobdell, or get in touch with Lindsay at 225-927-2273.

Breast Cancer Survivorship Luncheon a Success

On September 19^th, over 60 breast cancer survivors* gathered at Cancer Services to celebrate Breast Cancer Awareness Month. Held in partnership with Woman’s Hospital, the attendees enjoyed lunch and the company of fellow survivors, caregivers, family and friends.

The Breast Cancer Support Group meets every month but with the help of Woman’s, October’s meeting was larger and even more celebratory than usual, giving the opportunity to reach out to many new clients. Attendees ranged from currently in treatment to two weeks outs of treatment to thirty years out of treatment.

Breast cancer survivor and Cancer Services volunteer Sandra Cristal helped plan the event and was pleased with the huge turnout. “This is a cause that’s important to me and it was wonderful so many showed up – the room was almost too small!”

Adult Programs Coordinator Natalie Depp added, “This was a great opportunity to show that at our support groups we don’t just talk about problems and sad emotions but share friendships and celebrate where our clients are in their cancer journey.”

The Breast Cancer Support Group meets the third Wednesday every month at 11:30 at Cancer Services. For more information about this or any of our support groups, click here or call Natalie at 225-927-2273.

*Cancer Services defines a “cancer survivor” as anyone living with cancer, from the moment of diagnosis for the rest of their life.

Q&A: Questions to Ask Your Doctor

Every Sunday, Cancer Services publishes a Cancer Q&A in the Health Section of The Advocate.

Q: I am currently waiting on a cancer diagnosis. If I do have cancer, what questions should I ask my doctor?

A: Being informed and asking questions can give you some control over your condition and may help you cope. Studies show that patients who are informed about their disease and treatment options usually tend to fare better and have fewer side effects than those who simply follow doctors' orders. However, some people feel overwhelmed by too much information or the details regarding their condition. It is best to think how much information is right for you.

You can use the following list as a starting point. You do not have to ask every question and it might help you think of other questions you would like to ask. It’s a good idea to write your questions down before meeting with your doctor so you are sure not to forget anything. Having another person with you to ask questions and to listen to the answers is also a good idea. You may also want a notebook or tape recorder to capture important notes.

Possible questions for your doctor after a cancer diagnosis:

• What is my diagnosis?
• Has cancer spread to my lymph nodes or anywhere else?
• What is the stage of my cancer? What does this mean?
• How is staging used to determine cancer treatment?
• What is my prognosis (chance of recovery)?
• Can you explain my pathology report (laboratory test results) to me?
• What is the goal of treatment? What are my treatment choices? Which do you recommend for me? Why?
• What are the expected benefits of each kind of treatment?
• What are the risks and possible side effects of each treatment? How can side effects be managed?
• Will infertility be a side effect of my treatment?
• How often will I have treatments? How long will my treatment last?
• Will I have to change my normal activities? If so, for how long?
• What is the treatment likely to cost? Will my insurance cover the costs?
• What new treatments are under study? Would a clinical trial be appropriate for me?
• If I seek a second opinion, will I have to repeat any tests or procedures?
• What support services are available to me? To my family?
• Whom should I call with questions or concerns during non-business hours?
• May I contact you or the nurse to talk about additional information I find?

For more information contact Courtney Britton, librarian at Cancer Services of Greater Baton Rouge at (225) 927-2273, or visit the Resource Center at 550 Lobdell Avenue.

Breast Cancer Awareness Month

Known nationwide as Breast Cancer Awareness Month, October is a great time to spread awareness and talk about the impact of this disease.

Cancer Services of Greater Baton Rouge is here to help those living with all types of cancer, all year long.

This information was provided to Cancer Services by Sandra Christal, a breast cancer survivor and longtime volunteer with Susan G. Komen, Cancer Services of Greater Baton Rouge and Sisters Supporting Sisters.

IMPACT OF BREAST CANCER

-A woman dies because of breast cancer every 69 seconds somewhere in the world … but the really good news is that there are approximately 2.5 million breast cancer survivors alive today.

-In the U.S., approximately 40,000 people die every year from breast cancer … that’s about the same as the number of people who die in all traffic/highway crashes in America. And, about 200,000 people are diagnosed with breast cancer annually.

-Louisiana leads the nation in breast cancer deaths. African American women are often diagnosed at a later stage in the disease than other ethnic groups.

-Men can get breast cancer, about 2000 die every year from the disease.

-Early detection is the most important factor in the cure rate for breast cancer. Approximately 90% of cases have no genetic or family link.

Our partner, Komen for the Cure, urges 4 steps for breast self awareness:

1. Know your risk

a. Talk to your family to learn about your family health history

b. Talk to your doctor about your personal risk of breast cancer

2. Get screened

a. Ask your doctor which screening tests are right for you if you are at a higher risk

b. Have a mammogram every year starting at age 40 if you are at an average risk

c. Have a clinical breast exam at least every 3 years starting at age 20, and every year starting at 40

3. Know what is normal for you

a. See your health care provider right away if you notice any of these breast changes:

i. Lump, hard knot or thickening

ii. Swelling, warmth, redness or darkening

iii. Change in the size or shape of breast

iv. Dimpling or puckering of the skin

v. Itchy, scaly sore or rash on the nipple

vi. Pulling in of your nipple or other parts

vii. Nipple discharge that starts suddenly

viii. New pain in one spot that does not go away

4. Make healthy lifestyle choices

a. Maintain a healthy weight

b. Add exercise into your routine

c. Limit alcohol intake